12-Month Lobbying Summary - In-house Organization

Amyotrophic Lateral Sclerosis Society of Canada / Société Canadienne de la Sclérose Latérale Amyotrophique - Address, activities & membership

Address:

393 University Avenue, Suite 1701
Toronto, ON  M5G 1E6
Canada

Telephone number: 416-497-2267  Ext. 201

• Contact information in previous versions

  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Telephone number: 905-248-2052  Ext. 201
    
    
  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Telephone number: 905-248-2052
    
    
  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Telephone number: 905-248-2052  Ext. 206
    
    Fax number: 905-248-2019  
    
    
  • 265 Yorkland Blvd., Suite 300
    Toronto, ON  M2J 1S5
    Canada
    
    Telephone number: 416-497-2267  Ext. 206
    
    Fax number: 416-497-1257  
    
    

Description of the organization's activities:
Founded in 1977, the ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors. Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community, and participate in new areas of research where we are well-positioned to have an impact. Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS. Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community.

• Descriptions of the organization's activity in previous versions:

  • The Amyotrophic Lateral Sclerosis Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS, and support for those living with ALS. ALS Canada funds research towards a treatment for ALS, supports our federation member societies in the provision of quality care for those living with ALS, and provides information to build awareness about the disease. The vision of the ALS Society of Canada is to find a cure for ALS. ALS, more commonly known as Lou Gehrig's disease, is a rapidly progressive and fatal neuromuscular disorder that causes the degeneration of a select group of nerve cells in the brain and spinal cord. As the nerve cells die, people with ALS lose control of their muscles, which makes breathing, eating and even smiling almost impossible. Approximately 2,500 - 3,000 Canadians currently live with ALS.
  • The AmyotrophicLateral Sclerosis Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS, and support for those living with ALS.ALS Canada funds research towards a cure for ALS, supports our provincial partners in the provision of quality care for those living with ALS, and provides information to build awareness about the disease. The vision of the ALS Society of Canada is to find a cure for ALS.ALS, more commonly known as Lou Gehrig's disease, is a rapidly progressive and fatal neuromuscular disorder that causes the degeneration of a select group of nerve cells in the brain and spinal cord. As the nerve cells die, people with ALS lose control of their muscles, which makes breathing, eating and even smiling almost impossible. Approximately 2,500 - 3,000 Canadians currently live with ALS.

Organization's membership or classes of membership:
ALS Canada does not have members or classes of members.

• Organization's memberships or classes of memberships in previous versions:

  • ALS Canada operates within a federated model with representation from the 10 provinces, which provides a framework through which the partners work together and share resources. ALS Canada works with the provincial member societies to provide care to those affected by ALS, and to help fulfill our vision to find effective treatments and eventually a cure for this devastating disease. ALS Canada does not have members or classes of members.
  • Our federation of 11 Canadian ALS Societies (ALS Canada and the 10 provincial ALS societies) provides a framework through which the partners work together and share responsibilities, allowing for an efficiency not often seen in national health charities. ALS Canada works with the provincial societies to provide care to those affected by ALS, and to help fulfill our vision to find a cure for this devastating disease. The provincial ALS Societies' mandate is provide equipment, care and support services to people affected by ALS.ALS Canada does not have members or classes of members.

No government funding was received during the last completed financial year.

• Government funding in previous versions

  List of Government Funding

  End date of the last completed financial year	Government Institution	Funding Received in Last Financial Year	Funding Expected in Current Financial Year
  2022-12-31	Government of Ontario	$7,300.00	No
  2022-12-31	Government of Ontario	$7,300.00	No
  2022-12-31	Government of Ontario	$7,300.00	No
  2022-12-31	Government of Ontario	$7,300.00	No
  2022-12-31	Government of Ontario	$7,300.00	No
  2022-12-31	Government of Ontario	$7,300.00	No