Cystic Fibrosis Canada / Fibrose kystique Canada

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Registration: 33 of 33 (2025-12-04 to present)

Details Regarding the Identified Subject Matter

Subject matters	Details	Categories
Health	Advocating for implementation of Canada's drugs for rare diseases strategy.	Policies or Program
Health	Advocating to stop the regulatory changes to the Patented Medicines Price Review Board (PMPRB).	Regulation
Health	Improving access to precision medicines for Canadians with cystic fibrosis and other rare diseases.	Policies or Program
Health, Research and Development	Increased federal investment in health-related research.	Policies or Program, Grant, Contribution or Other Financial Benefit
Research and Development	In terms of research and development, we lobby for support of cystic fibrosis research initiatives that improve the health and wellness of Canadians living with cystic fibrosis.	Grant, Contribution or Other Financial Benefit, Policies or Program
Science and Technology	In terms of science and technology, we work toward the development of precision and personalized medicines that target the basic defect of cystic fibrosis. We are exploring how the federal government may support these efforts through partnership and funding.	Grant, Contribution or Other Financial Benefit, Policies or Program
Labour	With respect to disability, we advocate for recognition of and supports for people with episodic disabilities.	Policies or Program