Lobbying Information
Subject Matters
- Budget
- Education
- Employment and Training
- Health
- Housing
- Pensions
- Research and Development
- Science and Technology
- Taxation and Finance
- Transportation
Subject Matter Details
Grant, Contribution or Other Financial Benefit, Policies or Program
- Accelerate MS research: to accelerate MS research efforts and investments in areas that are of priority for people with MS and hold the most promise in leading to new treatments, better quality of life and a cure.
Legislative Proposal, Bill or Resolution
- Private Members Bill formerly known as Bill C-458, along with a proposal the MS Society of Canada has to improve flexibility in the Employment Insurance Sickness Benefits Program
- We are asking members of parliament to support Motion M-192 that states "That the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities be instructed to provide recommendations for legislative and policy changes necessary to ensure that the needs of persons with episodic disabilities caused, among other things, by multiple sclerosis, be adequately protected to ensure equity in government policy to support Canadians across all types of disability; that the Committee report to the House by February 2019; and that it be instructed to request a comprehensive government response to its report, pursuant to Standing Order 109.”
- We are asking that the federal government pass Bill C-81, the proposed Accessible Canada Act which includes all Canadians with disabilities whether their disabilities are visible or invisible, and whether they are permanent or episodic (periods of wellness followed by periods of disability). The definition of disability needs to include the notion of the changing dynamic of disability including episodic, which is the case for individuals living with progressive neurological diseases like MS;
Legislative Proposal, Bill or Resolution, Policies or Program
- Budget, with respect to increased funding for the Canadian Institutes of Health Research
- Budget, with respect to measures benefitting persons with disabilities and caregivers
- Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
- Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.
Policies or Program
- Access to drugs, with respect to the creation of catastrophic drug program for high cost medications
- Code of Practice, with respect to persons with MS and other disabilities
- Common Drug Review, with respect to increased public input during review process
- Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
- Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
- MS as military service-related condition, with respect to veterans' benefits and pensions
- Supportive low-cost housing, in respect for persons with MS and other chronic conditions and disabilities
Communication Techniques
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Written communication
-
Oral communication
-
Grass-roots communication
Government Institutions
-
Atlantic Canada Opportunities Agency (ACOA)
-
Canada Post Corporation (CPC)
-
Canada Revenue Agency (CRA)
-
Canadian Heritage (PCH)
-
Canadian Transportation Agency (CTA)
-
Employment and Social Development Canada (ESDC)
-
Finance Canada (FIN)
-
Global Affairs Canada (GAC)
-
Health Canada (HC)
-
House of Commons
-
Innovation, Science and Economic Development Canada (ISED)
-
Office of the Information Commissioner of Canada (OIC)
-
Office of the Privacy Commissioner of Canada (OPC)
-
Patented Medicine Prices Review Board (PMPRB)
-
Prime Minister's Office (PMO)
-
Privy Council Office (PCO)
-
Public Health Agency of Canada (PHAC)
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Public Services and Procurement Canada (PSPC)
-
Rural Economic Development (Minister’s Office)
-
Senate of Canada
-
Service Canada (ServCan)
-
Transport Canada (TC)
-
Treasury Board Of Canada Secretariat (TBS)
-
Veterans Affairs Canada (VAC)
In-house Organization Details
Description of the organization's activities
The Multiple Sclerosis Society of Canada is a health charity that supports research to find the cause, prevention and cure for MS, provides services and programs for persons with MS and their families and caregivers, and educates the public about the disease.
Responsible officer name and position during the period of this registration
Pamela Valentine,
President & CEO
Organization's membership or classes of membership
The MS Society has approximately 28,000 members who join the organization through their local chapters or division offices.
Government funding
End date of the last completed financial year:
2019-12-31
List of Government Funding
|
Government Institution
|
Funding Received in Last Financial Year
|
Funding Expected in Current Financial Year
|
|
Alberta - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$13,604.00
|
No
|
|
Alberta - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$10,879.00
|
No
|
|
Atlantic - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$10,934.00
|
Yes
|
|
Atlantic - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$12,240.00
|
Yes
|
|
British Columbia - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$16,219.00
|
Yes
|
|
British Columbia - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$20,005.00
|
Yes
|
|
British Columbia - Provincial Health Services Authority
|
$57,943.00
|
No
|
|
City of Edmonton
|
$17,000.00
|
No
|
|
City of Hamilton
|
$55,676.00
|
Yes
|
|
City of Hamilton
|
$12,000.00
|
Yes
|
|
Government of Alberta - Alberta Gaming and Liquor Commission
|
$38,223.00
|
Yes
|
|
Government of Alberta - Alberta Gaming and Liquor Commission
|
$194,633.00
|
Yes
|
|
Government of Alberta - Alberta Gaming - Community Initiative Program (Friendly Visiting)
|
$143,329.00
|
Yes
|
|
Government of Alberta - Alberta Gaming - Community Initiative Program (Friendly Visiting)
|
$134,456.00
|
Yes
|
|
Government of Quebec - Dept of Health & Social Services
|
$903,133.00
|
Yes
|
|
Government of Quebec - Emploi-Quebec
|
$17,288.00
|
No
|
|
Government of Quebec - Programme d'accompagnement en loisirs
|
$11,884.00
|
No
|
|
Government of Quebec - Programme d'accompagnement en loisirs
|
$16,322.00
|
No
|
|
Government of Quebec - Soutien à l'action bénévole, Gouvernement du Québec
|
$950.00
|
No
|
|
Mauricie-Fonds d'aide Bingo
|
$3,500.00
|
No
|
|
Municipality of Abitibi
|
$1,742.00
|
No
|
|
Municipality of Abitibi
|
$891.00
|
No
|
|
Municipality of Autres
|
$1,583.00
|
No
|
|
Municipality of Montreal
|
$5,000.00
|
Yes
|
|
Municipality of Montreal
|
$5,000.00
|
Yes
|
|
Ontario - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$82,247.00
|
Yes
|
|
Ontario - Government of Canada - Human Resources and Skills Development Canada (HRSDC)
|
$65,489.00
|
Yes
|
|
Ontario - New Horizons
|
$20,585.00
|
Yes
|
|
Ontario - New Horizons
|
$35,972.00
|
Yes
|
|
Province of British Columbia - Ministry of Public Safety and Solicitor General - Gaming Policy and Enforcement
|
$531,353.00
|
Yes
|
|
Province of British Columbia - Ministry of Public Safety and Solicitor General - Gaming Policy and Enforcement
|
$482,427.00
|
Yes
|
|
Province of Nova Scotia
|
$4,563.00
|
No
|
|
Public Works and Government Services Canada
|
$10,841.00
|
No
|
|
Town of Yellowknife
|
$1,500.00
|
No
|
|
Town of Yellowknife
|
$2,750.00
|
No
|
In-house Organization Contact Information
Address:
Suite 500
250 Dundas Street West
Toronto, ON M5T 2Z5
Canada
Telephone number:
416-922-6065
Fax number:
416-922-7538
Lobbyists Details
Employees who lobby for the organization
- Louis Adam,
President, Atlantic and Quebec Divisions |
No public offices held
- David Arbuthnot,
National VP, Shared Services |
No public offices held
- Charles Aruliah,
Government Relations Specialist |
No public offices held
- Jennifer Asselin,
Manager, Public Relations and Communications |
No public offices held
- Benjamin Davis,
Senior Vice-President, Mission |
No public offices held
- Marie-Claude Dufour,
Services Coordinator |
No public offices held
- Shawna Gutfreund,
Director, Strategic Initiatives |
No public offices held
- Pamela Kanellis,
AVP, Research |
No public offices held
- Judith Kays,
Director, Marketing, Communications, and Government Relations |
No public offices held
- Julie Kelndorfer,
Director, Government and Community Relations |
No public offices held
- Emily Knight,
Director, MS Knowledge Network |
No public offices held
- Jessica MacPherson,
Director, Government Relations and Research Support |
No public offices held
- Danielle Mandell,
VP People Innovation & Volunteers |
No public offices held
- Stephanie Mosher,
Senior Director, Community |
No public offices held
- Patrick Rooney,
Manager, Government Relations |
No public offices held
- Andria Samis,
Manager, Special Projects |
No public offices held
- Pam Seto,
AVP, Marketing and Communications |
No public offices held
- Kelsie Spurvey,
Manager, Community Operations |
No public offices held
- Pamela Valentine,
President & CEO |
No public offices held
- Joanna Valsamis,
Vice-President, Programs and Advocacy |
No public offices held
- Peter Van Harmelen,
Assistant Vice-President, Finance |
No public offices held
- Tania Vrionis,
Vice-President, Community |
No public offices held
