Lobbying Information
Subject Matters
- Health
- Industry
- Science and Technology
- Taxation and Finance
Subject matters added through a monthly communication report
Subject Matter Details
Grant, Contribution or Other Financial Benefit
- Advocating for an increase in funding for the Canadian Insitutes of Health Research (CIHR) with regards to increase the CIHR budget to $1.7 billion a year.
- Brain strategy Canada. We are a member of the Neurological Health Charities Canada and we would like the government to work with us to develop a brain strategy for all Canadians with neurological conditions.Brain strategy Canada. As a member of this coalition we are seeking funding from the government to ological Health Charities Canada and assist us in developing the brain strategy. The cost for the first part of the strategy is $2 million and that is what we are seeking from the government.
- To provide funding for neuromuscular diseases, one of which is Amyotrophic Lateral Sclerosis (ALS) with regards to continued funding from the government to help fund researchers in the neuromuscular field.
Grant, Contribution or Other Financial Benefit, Policies or Program
- Veteran Affairs - There is evidence from American studies that there is an increased incidence of ALS in miliary personnel. We would like the goverment to allow veterans with ALS and their families to be eligible for full health coverage, disability compensation and many other benefits. We are seeking funding for a research study from the government and we are looking to the government to review their policies/programs re vets who serve in the military who then are afflicted with ALS and are currently not eligible for benefits.
Policies or Program
- Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
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Training video for Veterans Affairs Staff about ALS
Government Institutions
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Canadian Institutes of Health Research (CIHR)
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Health Canada (HC)
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Human Resources and Social Development Canada (HRSDC)
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Members of the House of Commons
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National Defence (DND)
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Prime Minister's Office (PMO)
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Public Health Agency of Canada (PHAC)
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Senate of Canada
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Veterans Affairs Canada (VAC)
Government institutions added through a monthly communication report
- Finance Canada (FIN)
- House of Commons
- Human Resources and Skills Development Canada (HRSDC)
In-house Organization Details
Description of the organization's activities
The AmyotrophicLateral Sclerosis Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS, and support for those living with ALS.ALS Canada funds research towards a cure for ALS, supports our provincial partners in the provision of quality care for those living with ALS, and provides information to build awareness about the disease. The vision of the ALS Society of Canada is to find a cure for ALS.ALS, more commonly known as Lou Gehrig's disease, is a rapidly progressive and fatal neuromuscular disorder that causes the degeneration of a select group of nerve cells in the brain and spinal cord. As the nerve cells die, people with ALS lose control of their muscles, which makes breathing, eating and even smiling almost impossible. Approximately 2,500 - 3,000 Canadians currently live with ALS.
Responsible officer name and position during the period of this registration
Lindee David,
Chief Executive Officer
Organization's membership or classes of membership
Our federation of 11 Canadian ALS Societies (ALS Canada and the 10 provincial ALS societies) provides a framework through which the partners work together and share responsibilities, allowing for an efficiency not often seen in national health charities. ALS Canada works with the provincial societies to provide care to those affected by ALS, and to help fulfill our vision to find a cure for this devastating disease. The provincial ALS Societies' mandate is provide equipment, care and support services to people affected by ALS.ALS Canada does not have members or classes of members.
Government funding
No government funding was received during the last completed financial year.
In-house Organization Contact Information
Address:
3000 Steeles Avenue East, Suite 200
Markham, ON L3R 4T9
Canada
Telephone number:
905-248-2052
Ext.
206
Fax number:
905-248-2019
Lobbyists Details
Employees who lobby for the organization
- Lindee David,
Chief Executive Officer |
No public offices held
- Roberta (Bobbi) Greenberg,
Director - Communications |
No public offices held
