Lobbying Information
Subject Matters
- Budget
- Health
- Industry
- Research and Development
- Science and Technology
- Taxation and Finance
Subject Matter Details
Grant, Contribution or Other Financial Benefit
- Advocating for an increase in targeted research funding for ALS. Sources of funding are to be determined.
- To provide funding for neuromuscular diseases, one of which is ALS, with regards to reinstating funding from the government to help fund researchers in the neuromuscular field. Sources of funding are to be determined.
Policies or Program
- Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
- Policies or programs related to access to care and potential treatments for the ALS Community.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
Government Institutions
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Canadian Institutes of Health Research (CIHR)
-
Crown-Indigenous Relations and Northern Affairs Canada (CIRNAC)
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Employment and Social Development Canada (ESDC)
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Finance Canada (FIN)
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Health Canada (HC)
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House of Commons
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Innovation, Science and Economic Development Canada (ISED)
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Natural Resources Canada (NRCan)
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Prime Minister's Office (PMO)
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Public Health Agency of Canada (PHAC)
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Senate of Canada
Government institutions added through a monthly communication report
- Indigenous Services Canada (ISC)
In-house Organization Details
Description of the organization's activities
Founded in 1977, the ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors.
Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community, and participate in new areas of research where we are well-positioned to have an impact.
Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS.
Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community.
Responsible officer name and position during the period of this registration
Tammy Moore,
Chief Executive Officer
Organization's membership or classes of membership
ALS Canada does not have members or classes of members.
Government funding
End date of the last completed financial year:
2022-12-31
List of Government Funding
|
Government Institution
|
Funding Received in Last Financial Year
|
Funding Expected in Current Financial Year
|
|
Government of Ontario
|
$7,300.00
|
No
|
In-house Organization Contact Information
Address:
393 University Avenue, Suite 1701
Toronto, ON M5G 1E6
Canada
Telephone number:
416-497-2267
Ext.
201
Lobbyists Details
Employees who lobby for the organization
- Grant Shawn Chirrey,
Director, Advocacy and Stakeholder Relations |
No public offices held
- Tammy Moore,
Chief Executive Officer |
No public offices held
- David Taylor,
Vice President, Research |
No public offices held
- Ilayda Ulgenalp,
Specialist, Advocacy and Stakeholder Relations |
No public offices held
