Lobbying Information
Subject Matters
- Health
- Industry
- Science and Technology
- Taxation and Finance
Subject Matter Details
Policies or Program
- Engagement with officials on issues related to rare disorder and orphan drug policies in the context of the development of national pharmacare.
- Establish Health Canada policies or programs related to orphan drug policy to address treatment for rare disorders, including part of any national pharmacare program or strategy
- Establish Health Canada policies to ensure access to essential treatment for rare disorders
- Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders
- Scientific Research and Experimental Development Tax Incentive Program as it pertains to research and development of treatments for rare disorders
Policies or Program, Regulation
- Share perspectives of the rare disorders patient community on drug pricing issues, specifically regulations and guidelines related to the Patented Medicine Prices Review Board.
Regulation
- Amendments to the Patented Medicines Regulations published in Canada Gazette, Part II on August 21, 2019 and June 10, 2020.
- Regulatory amendments to the Food and Drugs Act Regulations to implement an orphan drug regulatory framework.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
The lobbyist has arranged or expects to arrange one or more meetings on behalf of the client between a public office holder and any other person in the course of this undertaking.
Government Institutions
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Finance Canada (FIN)
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Health Canada (HC)
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House of Commons
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Innovation, Science and Economic Development Canada (ISED)
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Patented Medicine Prices Review Board (PMPRB)
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Prime Minister's Office (PMO)
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Senate of Canada
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Treasury Board Of Canada Secretariat (TBS)
Client Details
Government funding
No government funding was received during the last completed financial year.
Client Contact Information
Address:
151 Bloor Street West, Suite 600
Toronto, ON M5S 1S4
Canada
Telephone number:
416-969-7464
Client representative
Durhane Wong-Rieger, President
Parent Company Information
Canadian Organization for Rare Disorders is not a subsidiary of any other parent companies.
Coalition Members Information
Canadian Organization for Rare Disorders is not a coalition.
Individual, organization or corporation with a Direct Interest Beneficiary Information
The activities of Canadian Organization for Rare Disorders are not controlled or directed by another individual, organization or corporation with a direct interest in the outcome of this undertaking.
Subsidiary Beneficiary Information
Canadian Organization for Rare Disorders does not have any subsidiaries that could have a direct interest in the outcome of the undertaking
Lobbyist Details
WILLIAM DEMPSTER
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Public offices held
Business address:
150 Metcalfe Street
Suite 604
OTTAWA, ON K2P 1P1
Canada
Telephone number:
613-614-0283
Fax number:
613-249-3645
Consultant Firm and Address
Firm:
3Sixty Public Affairs Inc. / 3Sixty Public Affairs Inc.
Address:
150 Metcalfe Street
Suite 604
Ottawa, ON K2P 1P1
Canada
Telephone number:
613-800-8340
Fax number:
613-800-8343