Registry of Lobbyists
| Subject matters | Details | Categories |
|---|---|---|
|
Health
|
Advocating for implementation of Canada's drugs for rare diseases strategy.
|
Policies or Program
|
|
Health
|
Advocating to stop the regulatory changes to the Patented Medicines Price Review Board (PMPRB).
|
Regulation
|
|
Health
|
Improving access to precision medicines for Canadians with cystic fibrosis and other rare diseases.
|
Policies or Program
|
|
Health, Research and Development
|
Increased federal investment in health-related research.
|
Policies or Program, Grant, Contribution or Other Financial Benefit
|
|
Research and Development
|
In terms of research and development, we lobby for support of cystic fibrosis research initiatives that improve the health and wellness of Canadians living with cystic fibrosis.
|
Grant, Contribution or Other Financial Benefit, Policies or Program
|
|
Science and Technology
|
In terms of science and technology, we work toward the development of precision and personalized medicines that target the basic defect of cystic fibrosis. We are exploring how the federal government may support these efforts through partnership and funding.
|
Policies or Program, Grant, Contribution or Other Financial Benefit
|
|
Labour
|
With respect to disability, we advocate for recognition of and supports for people with episodic disabilities.
|
Policies or Program
|
Cystic Fibrosis Canada is a health charity that supports cystic fibrosis (CF)-related research and care with the goal of finding a cure or effective control for CF, and educates the public about the disease.
Kelly Grover, President and Chief Executive Officer
Address:
20 Eglinton Avenue West
Suite 1305
Toronto, ON M4R 1K8
Canada
Telephone number:
416-485-9149
Ext.
238