Office of the Commissioner of Lobbying of Canada
Registry of Lobbyists

Monthly Communication Report

16791-650908

Organization: Amyotrophic Lateral Sclerosis Society of Canada/Société Canadienne de la Sclérose Latérale Amyotrophique
Associated registration: 895134-16791-35
Communication date: 2025-10-02
Posted date: 2025-10-15

Designated Public Office Holders who participated in the communication: Dr. Jane Rylett, Scientific Director of the CIHR Institute of Aging
Canadian Institutes of Health Research (CIHR)

Dr. Patricia Conrod, Scientific Director of the CIHR Institute of Neurosciences, Mental Health and Addiction
Canadian Institutes of Health Research (CIHR)
 
List of Details
Subject matter Detail
Health, Research and Development, Science and Technology Policies or programs related to access to care and potential treatments for the ALS Community.
Budget, Health, Research and Development, Science and Technology To provide funding for neuromuscular diseases, one of which is ALS, with regards to reinstating funding from the government to help fund researchers in the neuromuscular field. Sources of funding are to be determined.
 
Communication Report amended on: 2025-10-15 previous entry: 16791-648818
Reason for amendment: All meetings from Lobby Day were inadvertently consolidated into one communication
 
Responsible Officer who filed this communication report: Tammy Moore
 
As the most senior paid officer, the person named above is responsible for certifying the communication report for the corporation or organization (Registrant). This person may or may not have participated in the reported communication.

The Lobbyists Registration Regulations do not require that the names of in-house lobbyists (i.e. employees of corporations or organizations) who actually participated in the communication be disclosed.
 

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