Registration - In-house Organization

MS Canada / SP Canada / Pamela Valentine, President & CEO

Registration Information

In-house Organization name: MS Canada / SP Canada
Previous in-house organization names
Responsible Officer Name: Pamela Valentine, President & CEO
Responsible Officer Change History
Initial registration start date: 2007-03-23
Registration status: Active
Registration Number: 935976-14937

Associated Communications

Total Number of Communication Reports: 754

Monthly communication reports in the last 6 months: 8

Version 49 of 83 (2021-06-22 to 2021-10-20)

Registration versions:

Version 49 of 83 (2021-06-22 to 2021-10-20)

Lobbying Information

Subject Matters

Budget
Education
Employment and Training
Health
Housing
Pensions
Research and Development
Science and Technology
Taxation and Finance
Transportation

Subject Matter Details

Grant, Contribution or Other Financial Benefit

COVID-19 government funding

Grant, Contribution or Other Financial Benefit, Policies or Program

Accelerate MS research: to accelerate MS research efforts and investments in areas that are of priority for people with MS and hold the most promise in leading to new treatments, better quality of life and a cure.

Legislative Proposal, Bill or Resolution

Private Members Bill formerly known as Bill C-458, along with a proposal the MS Society of Canada has to improve flexibility in the Employment Insurance Sickness Benefits Program
We are asking members of parliament to support Motion M-192 that states "That the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities be instructed to provide recommendations for legislative and policy changes necessary to ensure that the needs of persons with episodic disabilities caused, among other things, by multiple sclerosis, be adequately protected to ensure equity in government policy to support Canadians across all types of disability; that the Committee report to the House by February 2019; and that it be instructed to request a comprehensive government response to its report, pursuant to Standing Order 109.”
We are asking that the federal government pass Bill C-81, the proposed Accessible Canada Act which includes all Canadians with disabilities whether their disabilities are visible or invisible, and whether they are permanent or episodic (periods of wellness followed by periods of disability). The definition of disability needs to include the notion of the changing dynamic of disability including episodic, which is the case for individuals living with progressive neurological diseases like MS;

Legislative Proposal, Bill or Resolution, Policies or Program

Budget, with respect to increased funding for the Canadian Institutes of Health Research
Budget, with respect to measures benefitting persons with disabilities and caregivers
Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.

Policies or Program

Access to drugs, with respect to the creation of catastrophic drug program for high cost medications
Code of Practice, with respect to persons with MS and other disabilities
Common Drug Review, with respect to increased public input during review process
Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
MS as military service-related condition, with respect to veterans' benefits and pensions
Supportive low-cost housing, in respect for persons with MS and other chronic conditions and disabilities

Communication Techniques

Written communication
Oral communication
Grass-roots communication

Government Institutions

Atlantic Canada Opportunities Agency (ACOA)
Canada Post Corporation (CPC)
Canada Revenue Agency (CRA)
Canadian Heritage (PCH)
Canadian Transportation Agency (CTA)
Employment and Social Development Canada (ESDC)
Finance Canada (FIN)
Global Affairs Canada (GAC)
Health Canada (HC)
House of Commons
Innovation, Science and Economic Development Canada (ISED)
Office of the Information Commissioner of Canada (OIC)
Office of the Privacy Commissioner of Canada (OPC)
Patented Medicine Prices Review Board (PMPRB)
Prime Minister's Office (PMO)
Privy Council Office (PCO)
Public Health Agency of Canada (PHAC)
Public Services and Procurement Canada (PSPC)
Rural Economic Development (Minister’s Office)
Senate of Canada
Service Canada (ServCan)
Transport Canada (TC)
Treasury Board Of Canada Secretariat (TBS)
Veterans Affairs Canada (VAC)

In-house Organization Details

Description of the organization's activities

The Multiple Sclerosis Society of Canada is a health charity that supports research to find the cause, prevention and cure for MS, provides services and programs for persons with MS and their families and caregivers, and educates the public about the disease.

Responsible officer name and position during the period of this registration

Pamela Valentine, President & CEO

Organization's membership or classes of membership

The MS Society has approximately 28,000 members who join the organization through their local chapters or division offices.

Government funding

End date of the last completed financial year: 2020-12-31

List of Government Funding
Government Institution	Funding Received in Last Financial Year	Funding Expected in Current Financial Year
Canada Revenue Agency (CRA)	$4,335,379.19	No
City of Brandon	$1,500.00	No
City of Edmonton	$17,000.00	No
City of Montreal	$8,470.00	No
City of Regina	$6,842.13	No
Employment and Social Development Canada (ESDC)	$75,000.00	No
Government of Alberta	$168,071.00	Yes
Government of Canada - Human Resources and Skills Development Canada (HRSDC)	$11,745.00	No
Government of Quebec	$1,072,672.00	Yes
Municipality of Abitibi	$378.00	No
Northern Ontario Heritage Fund	$27,846.00	No
Province of British Columbia - Ministry of Public Safety and Solicitor General - Gaming Policy and Enforcement	$381,529.00	Yes
Province of Nova Scotia	$2,473.00	No
Town of Yellowknife	$2,550.00	No

In-house Organization Contact Information

Address:
Suite 500
250 Dundas Street West
Toronto, ON M5T 2Z5
Canada

Telephone number: 416-922-6065
Fax number: 416-922-7538

Lobbyists Details

Employees who lobby for the organization

Louis Adam, President, Atlantic and Quebec Divisions | No public offices held
David Arbuthnot, National VP, Shared Services | No public offices held
Jennifer Asselin, Senior Manager, Public Relations and Communications | No public offices held
Benjamin Davis, Senior Vice-President, Mission | No public offices held
Marie-Claude Dufour, Services Coordinator | No public offices held
Shawna Gutfreund, Director, Strategic Initiatives | No public offices held
Pamela Kanellis, AVP, Research | No public offices held
Julie Kelndorfer, Director, Government and Community Relations | No public offices held
Emily Knight, Director, MS Knowledge Network | No public offices held
Jessica MacPherson, Director, Government Relations and Research Support | No public offices held
Danielle Mandell, VP People Innovation & Volunteers | No public offices held
Stephanie Mosher, Senior Director, Community | No public offices held
Patrick Rooney, Manager, Government Relations | No public offices held
Andria Samis, Manager, Special Projects | No public offices held
Pam Seto, AVP, Marketing and Communications | No public offices held
Denise Sisson, Manager, Community Operations | No public offices held
Pamela Valentine, President & CEO | No public offices held
Peter Van Harmelen, Assistant Vice-President, Finance | No public offices held
Tania Vrionis, Vice-President, Community | No public offices held

MS Canada/SP Canada

The following names have been used on or after July 2, 2008

Name	From	To
MS Canada/SP Canada	2023-01-12	current
Multiple Sclerosis Society of Canada/Societe canadienne de la sclerose en plaques	2008-12-22	2023-01-12

The following names have been used before July 2, 2008

Multiple Sclerosis Society of Canada

MS Canada / SP Canada

Responsible Officer History
Responsible Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)
Pamela Valentine	2018-01-11	Current
Sylvia Leonard	2017-04-01	2018-01-11
Yves Savoie	2007-03-23	2017-04-01

Date Modified:: 2026-05-11

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Registration - In-house Organization

MS Canada / SP Canada / Pamela Valentine, President & CEO

Registration Information

Associated Communications

Version 49 of 83 (2021-06-22 to 2021-10-20)

Version 49 of 83 (2021-06-22 to 2021-10-20)

Subject Matters

Subject Matter Details

Grant, Contribution or Other Financial Benefit

Grant, Contribution or Other Financial Benefit, Policies or Program

Legislative Proposal, Bill or Resolution

Legislative Proposal, Bill or Resolution, Policies or Program

Policies or Program

Communication Techniques

Government Institutions

Description of the organization's activities

Responsible officer name and position during the period of this registration

Organization's membership or classes of membership

Government funding

In-house Organization Contact Information

Employees who lobby for the organization