Registry of Lobbyists
| Subject matters | Details | Categories |
|---|---|---|
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Health
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Amendment to the compassionate care program to make it more accessible to caregivers and to increase the length of the benefit.
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Policies or Program
|
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Health, Research and Development, Science and Technology
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Policies or programs related to access to care and potential treatments for the ALS Community.
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Policies or Program
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Budget, Defence, Economic Development, Health, Industry, Research and Development, Science and Technology, Taxation and Finance
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To provide funding for the Canadian Collaboration to Cure ALS, to establish a coordinated national research ecosystem through which every Canadian living with ALS can participate in, and benefit from, cutting-edge science that will accelerate discoveries by Canadian researchers, advance understanding of the disease, and enable the development of therapies to treat this devastating terminal illness with greater precision. Sources of funding are to be determined.
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Grant, Contribution or Other Financial Benefit, Policies or Program
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Founded in 1977, the ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors. Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community, and participate in new areas of research where we are well-positioned to have an impact. Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS. Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community.
Tammy Moore, Chief Executive Officer
End date of the last completed financial year: 2025-12-31
| Government Institution | Funding Received in Last Financial Year | Funding Expected in Current Financial Year |
|---|---|---|
| Ontario Ministry of Health | $800,000.00 | Yes |
Address:
180 Bloor Street West, Suite 500
Toronto, ON M5S 2V6
Canada
Telephone number:
437-290-3406