Registry of Lobbyists
Subject matters | Details | Categories |
---|---|---|
Budget,
Health,
Research and Development,
Taxation and Finance
|
Access to treatments as it relates to the current regulatory and price negotiation processes to enhance timely access to all Health Canada approved MS disease-modifying therapies, with respect to the National Strategy for Drugs for Rare Diseases and national pharmacare.
|
Policies or Program
|
Budget,
Health,
Research and Development,
Taxation and Finance
|
Bill C-64, An Act Respecting Pharmacare with respect for persons with MS and other chronic conditions and disabilities
|
Legislative Proposal, Bill or Resolution
|
Budget,
Health,
Research and Development,
Science and Technology,
Taxation and Finance
|
CIHR as it relates to federal funding & long term investment in health research
|
Policies or Program
|
Budget,
Employment and Training,
Health,
Taxation and Finance
|
Canada Disability Benefit Regulations, with respect to creating a benefit that can be accessed by Canadians with episodic disabilities and lifts Canadians with disabilities out of poverty
|
Regulation
|
Budget,
Health,
Housing,
Taxation and Finance
|
Canada Health Act and regulations, as it relates to long-term and home care
|
Regulation
|
Budget,
Health,
Taxation and Finance
|
Canada Health Transfer - health system funding transfer and agreements intended for provinces/territories to support the delivery of healthcare services, including MS care
|
Policies or Program
|
Budget,
Employment and Training,
Health,
Pensions,
Taxation and Finance
|
Canada Pension Plan – Disability with respect to eligibility for persons with MS and other chronic and episodic disabilities
|
Policies or Program
|
Budget,
Employment and Training,
Health,
Housing,
Pensions,
Taxation and Finance
|
Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
|
Policies or Program
|
Budget,
Health,
Taxation and Finance
|
Disability Tax Credit with respect to making it refundable and ensuring eligibility for Canadians with episodic disabilities
|
Legislative Proposal, Bill or Resolution,
Policies or Program,
Regulation
|
Budget,
Employment and Training,
Health,
Taxation and Finance
|
Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
|
Policies or Program,
Regulation
|
Budget,
Health,
Research and Development,
Science and Technology
|
Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.
|
Legislative Proposal, Bill or Resolution,
Policies or Program
|
Budget,
Employment and Training,
Health,
Housing,
Labour,
Pensions,
Research and Development,
Science and Technology,
Taxation and Finance,
Transportation
|
Federal Budget: Allocate funding for the Canada Disability Benefit, the Employment Insurance Sickness Benefit; health research; access to treatment and care; and other budgetary policy as it relates to MS.
|
Legislative Proposal, Bill or Resolution,
Policies or Program,
Regulation
|
Budget,
Health,
Housing,
Taxation and Finance
|
Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
|
Policies or Program
|
Budget,
Taxation and Finance
|
Measures and funding for the charitable sector generally
|
Policies or Program
|
Budget,
Health,
Housing,
Taxation and Finance
|
National Housing Strategy with respect for persons with MS and other chronic conditions and disabilities
|
Policies or Program
|
Budget,
Health,
Housing,
Taxation and Finance
|
Safe Long-Term Care Act with respect to persons affected by MS
|
Legislative Proposal, Bill or Resolution
|
Budget,
Health,
Research and Development,
Science and Technology,
Taxation and Finance
|
We ask the federal government to fund MS research in partnership with MS Canada, leveraging our connections and expertise to focus and further our understanding of MS, pursue leading-edge research on repair and regeneration, and explore prevention strategies, including targeting the Epstein-Barr virus (EBV).
|
Grant, Contribution or Other Financial Benefit,
Policies or Program
|
Subject matters | Details | Categories |
---|---|---|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Accelerate MS research: to accelerate MS research efforts and investments in areas that are of priority for people with MS and hold the most promise in leading to new treatments, better quality of life and a cure.
|
Grant, Contribution or Other Financial Benefit,
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Access to drugs, with respect to the creation of catastrophic drug program for high cost medications
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Access to treatments as it relates to the current regulatory and price negotiation processes to enhance timely access to all Health Canada approved MS disease-modifying therapies, with respect to the National Strategy for Drugs for Rare Diseases and national pharmacare.
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Bill C-64, An Act Respecting Pharmacare with respect for persons with MS and other chronic conditions and disabilities
|
Legislative Proposal, Bill or Resolution
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Budget, with respect to increased funding for the Canadian Institutes of Health Research
|
Legislative Proposal, Bill or Resolution,
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Budget, with respect to measures benefitting persons with disabilities and caregivers
|
Legislative Proposal, Bill or Resolution,
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
CIHR as it relates to federal funding & long term investment in health research
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
COVID-19 government funding
|
Grant, Contribution or Other Financial Benefit
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Canada Disability Benefit Regulations, with respect to creating a benefit that can be accessed by Canadians with episodic disabilities and lifts Canadians with disabilities out of poverty
|
Regulation
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Canada Health Act and regulations, as it relates to long-term and home care
|
Regulation
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Canada Health Transfer - health system funding transfer and agreements intended for provinces/territories to support the delivery of healthcare services, including MS care
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Canada Pension Plan – Disability with respect to eligibility for persons with MS and other chronic and episodic disabilities
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Code of Practice, with respect to persons with MS and other disabilities
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Common Drug Review, with respect to increased public input during review process
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Disability Tax Credit with respect to making it refundable and ensuring eligibility for Canadians with episodic disabilities
|
Legislative Proposal, Bill or Resolution,
Policies or Program,
Regulation
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
|
Legislative Proposal, Bill or Resolution,
Policies or Program,
Regulation
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.
|
Legislative Proposal, Bill or Resolution,
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Federal Budget: Allocate funding for the Canada Disability Benefit, the Employment Insurance Sickness Benefit; health research; access to treatment and care; and other budgetary policy as it relates to MS.
|
Legislative Proposal, Bill or Resolution,
Policies or Program,
Regulation
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
MS as military service-related condition, with respect to veterans' benefits and pensions
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Measures and funding for the charitable sector generally
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
National Housing Strategy with respect for persons with MS and other chronic conditions and disabilities
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Private Members Bill formerly known as Bill C-458, along with a proposal the MS Society of Canada has to improve flexibility in the Employment Insurance Sickness Benefits Program
|
Legislative Proposal, Bill or Resolution
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Safe Long-Term Care Act with respect to persons affected by MS
|
Legislative Proposal, Bill or Resolution
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
Supportive low-cost housing, in respect for persons with MS and other chronic conditions and disabilities
|
Policies or Program
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
We are asking members of parliament to support Motion M-192 that states "That the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities be instructed to provide recommendations for legislative and policy changes necessary to ensure that the needs of persons with episodic disabilities caused, among other things, by multiple sclerosis, be adequately protected to ensure equity in government policy to support Canadians across all types of disability; that the Committee report to the House by February 2019; and that it be instructed to request a comprehensive government response to its report, pursuant to Standing Order 109.”
|
Legislative Proposal, Bill or Resolution
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
We are asking that the federal government pass formerly known as Bill C-81, the proposed Accessible Canada Act which includes all Canadians with disabilities whether their disabilities are visible or invisible, and whether they are permanent or episodic (periods of wellness followed by periods of disability). The definition of disability needs to include the notion of the changing dynamic of disability including episodic, which is the case for individuals living with progressive neurological diseases like MS;
|
Legislative Proposal, Bill or Resolution
|
Subject matters were not required to be associated with subject matter details when this content was submitted
|
We ask the federal government to fund MS research in partnership with MS Canada, leveraging our connections and expertise to focus and further our understanding of MS, pursue leading-edge research on repair and regeneration, and explore prevention strategies, including targeting the Epstein-Barr virus (EBV).
|
Grant, Contribution or Other Financial Benefit,
Policies or Program
|
Communication techniques that have been used or are expected to be used in the course of the undertaking:
Date | DPOH, Position Title | Government Institution | Subject Matters |
---|---|---|
2024-09-24 |
|
Budget, Health, Research and Development, Taxation and Finance |
2024-08-28 |
|
Employment and Training, Taxation and Finance |
2024-08-06 |
|
Budget, Health, Research and Development, Taxation and Finance |
2024-07-09 |
|
Budget, Health, Research and Development, Taxation and Finance |
2024-05-24 |
|
Budget, Health, Research and Development, Taxation and Finance |
2024-05-21 |
|
Budget, Health, Research and Development |
2024-05-01 |
|
Research and Development |
2024-04-30 |
|
Budget, Employment and Training, Health, Housing, Labour, Research and Development, Science and Technology, Taxation and Finance |
2024-04-29 |
|
Budget, Employment and Training, Health, Housing, Research and Development, Science and Technology, Taxation and Finance |
2023-11-23 |
|
Health, Research and Development, Taxation and Finance |
2023-11-03 |
|
Budget, Health |
2023-10-26 |
|
Budget, Health |
2023-10-23 |
|
Budget, Health, Housing |