Sommaire de 12 mois d'activités de lobbying - Lobbyistes salariés d'organisations

Société Canadienne de la Sclérose Latérale Amyotrophique / Amyotrophic Lateral Sclerosis Society of Canada - Adresse, activités et membres

Adresse :

393 University Avenue, Suite 1701
Toronto, ON  M5G 1E6
Canada

Numéro de téléphone : 416-497-2267  Poste 201

• Coordonnées dans les versions précédentes

  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Numéro de téléphone : 905-248-2052  Poste 201
    
    
  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Numéro de téléphone : 905-248-2052
    
    
  • 3000 Steeles Avenue East, Suite 200
    Markham, ON  L3R 4T9
    Canada
    
    Numéro de téléphone : 905-248-2052  Poste 206
    
    Numéro de fax : 905-248-2019  
    
    
  • 265 Yorkland Blvd., Suite 300
    Toronto, ON  M2J 1S5
    Canada
    
    Numéro de téléphone : 416-497-2267  Poste 206
    
    Numéro de fax : 416-497-1257  
    
    

Description des activités de l'organisation :
Founded in 1977, the ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors. Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community, and participate in new areas of research where we are well-positioned to have an impact. Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS. Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community.

• Descriptions des activités de l'organisation dans les versions précédentes :

  • The Amyotrophic Lateral Sclerosis Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS, and support for those living with ALS. ALS Canada funds research towards a treatment for ALS, supports our federation member societies in the provision of quality care for those living with ALS, and provides information to build awareness about the disease. The vision of the ALS Society of Canada is to find a cure for ALS. ALS, more commonly known as Lou Gehrig's disease, is a rapidly progressive and fatal neuromuscular disorder that causes the degeneration of a select group of nerve cells in the brain and spinal cord. As the nerve cells die, people with ALS lose control of their muscles, which makes breathing, eating and even smiling almost impossible. Approximately 2,500 - 3,000 Canadians currently live with ALS.
  • The AmyotrophicLateral Sclerosis Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS, and support for those living with ALS.ALS Canada funds research towards a cure for ALS, supports our provincial partners in the provision of quality care for those living with ALS, and provides information to build awareness about the disease. The vision of the ALS Society of Canada is to find a cure for ALS.ALS, more commonly known as Lou Gehrig's disease, is a rapidly progressive and fatal neuromuscular disorder that causes the degeneration of a select group of nerve cells in the brain and spinal cord. As the nerve cells die, people with ALS lose control of their muscles, which makes breathing, eating and even smiling almost impossible. Approximately 2,500 - 3,000 Canadians currently live with ALS.

Membres ou types de membres de l'organisation. :
ALS Canada does not have members or classes of members.

• Membres ou types de membres de l'organisation dans les versions précédentes :

  • ALS Canada operates within a federated model with representation from the 10 provinces, which provides a framework through which the partners work together and share resources. ALS Canada works with the provincial member societies to provide care to those affected by ALS, and to help fulfill our vision to find effective treatments and eventually a cure for this devastating disease. ALS Canada does not have members or classes of members.
  • Our federation of 11 Canadian ALS Societies (ALS Canada and the 10 provincial ALS societies) provides a framework through which the partners work together and share responsibilities, allowing for an efficiency not often seen in national health charities. ALS Canada works with the provincial societies to provide care to those affected by ALS, and to help fulfill our vision to find a cure for this devastating disease. The provincial ALS Societies' mandate is provide equipment, care and support services to people affected by ALS.ALS Canada does not have members or classes of members.

Aucun financement public n'a été reçu au cours du dernier exercice financier complet.

• Financement public dans les versions précédentes

  Liste du financement public

  Date de la fin du dernier exercice financier complet	Institution gouvernementale	Financement reçu au cours du dernier exercice financier	Financement attendu pendant l'exercice financier en cours
  2022-12-31	Government of Ontario	7 300,00 $	Non
  2022-12-31	Government of Ontario	7 300,00 $	Non
  2022-12-31	Government of Ontario	7 300,00 $	Non
  2022-12-31	Government of Ontario	7 300,00 $	Non