12-Month Lobbying Summary - Consultant

Details Regarding the Identified Subject Matter

Subject matters	Details	Categories
Budget, Health, Industry	Engagement with officials on issues related to the National Strategy for Rare Disease Drugs, and other policies or programs.	Policies or Program
Budget, Health, Industry	Engagement with officials on the development of the Canada's Drug Agency and Bill C-64: An Act respecting pharmacare	Legislative Proposal, Bill or Resolution, Policies or Program
Health, Industry, Research and Development, Science and Technology	Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders	Policies or Program
Health	Regulatory amendments to the Food and Drugs Act Regulations to implement an orphan drug regulatory framework.	Regulation
Budget, Health, Industry, Research and Development, Science and Technology	Scientific Research and Experimental Development Tax Incentive Program as it pertains to research and development of treatments for rare disorders.	Policies or Program
Budget, Health, Industry	Share perspectives of the rare disease patient community on drug pricing issues, specifically regulations and guidelines related to the Patented Medicine Prices Review Board.	Policies or Program, Regulation

• Subject matter details in previous versions

  Details Regarding the Identified Subject Matter

  Subject matters	Details	Categories
  Subject matters were not required to be associated with subject matter details when this content was submitted	Engagement with officials on issues related to rare disease policies in the context of the development of a national pharmacare program.	Policies or Program
  Subject matters were not required to be associated with subject matter details when this content was submitted	Establish Health Canada policies or programs related to orphan drug policy to address treatment for rare disorders, including part of any national pharmacare program or strategy	Policies or Program
  Subject matters were not required to be associated with subject matter details when this content was submitted	Establish Health Canada policies to ensure access to essential treatment for rare disorders	Policies or Program
  Subject matters were not required to be associated with subject matter details when this content was submitted	Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders	Policies or Program
  Subject matters were not required to be associated with subject matter details when this content was submitted	Regulatory amendments to the Food and Drugs Act Regulations to implement an orphan drug regulatory framework.	Regulation
  Subject matters were not required to be associated with subject matter details when this content was submitted	Scientific Research and Experimental Development Tax Incentive Program as it pertains to research and development of treatments for rare disorders	Policies or Program
  Subject matters were not required to be associated with subject matter details when this content was submitted	Share perspectives of the rare disorders patient community on drug pricing issues, specifically regulations and guidelines related to the Patented Medicine Prices Review Board.	Policies or Program, Regulation

  Subject matters in previous versions

  • Health
  • Industry
  • Science and Technology
  • Taxation and Finance

Government Institutions

• Finance Canada (FIN)
• Health Canada (HC)
• House of Commons
• Innovation, Science and Economic Development Canada (ISED)
• Patented Medicine Prices Review Board (PMPRB)
• Prime Minister's Office (PMO)
• Senate of Canada
• Treasury Board Of Canada Secretariat (TBS)

Communication techniques

Communication techniques that have been used or are expected to be used in the course of the undertaking:

• Oral communication
• Grass-roots communication
• Written communication
• Arrange one or more meetings

Johanne Chambers, Consultant (Business address and contact information)

Public offices held