RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares / Johanne Chambers,
Consultant
Registration Summary
Inactive
-
Activity Ended:
2023-09-15
Who is lobbying?
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares
- Coalition
(Address & client representative)
Received government funding or funding expected in current financial year
No
Business Relationships
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares is not a subsidiary of any other parent companies.
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares is a coalition with the following members
The activities of RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares are not controlled or directed by another individual, organization or corporation with a direct interest in the outcome of this undertaking.
RAREi - The Canadian Forum for Rare Disease Innovators/iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares does not have any subsidiaries that could have a direct interest in the outcome of the undertaking
What is being lobbied?
Subject Matters
Economic Development
Health
Industry
Intellectual Property
International Trade
Science and Technology
Taxation and Finance
Subject Matter Details
Policies or Program
Federal programs and budgetary initiatives related to the Federal-Provincial-Territorial funding arrangements regarding pharmaceuticals including addressing any health technology assessment-related or other policy discussions that might involve Health Canada and its ongoing relationship with the Canadian Agency for Drugs and Technologies in Health (CADTH) and/or other pan-Canadian health organizations.
Federally-funded public drug plans, with respect to reimbursement for drug products for federal plan beneficiaries.
Innovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda and other government policies and programs related to incentivizing research and development activities in Canada.
Proposals to amend guidelines related to the operationalization of the legislation and regulations governing the Patented Medicine Prices Review Board
The federal role in considering developing and/or funding a national pharmacare program on issues related to access to medicines and rare disease and orphan drug policies
Policies or Program, Regulation
Guidelines, policies and programs related to regulatory and reporting functions of the Patented Medicine Prices Review Board
Regulatory amendments and/or guidelines and/or policies related to the Food and Drugs Act and Health Canada review of drugs for rare diseases.
Who is being lobbied?
Government Institutions
Global Affairs Canada (GAC)
Health Canada (HC)
House of Commons
Innovation, Science and Economic Development Canada (ISED)
Justice Canada (JC)
Patented Medicine Prices Review Board (PMPRB)
Prime Minister's Office (PMO)
Privy Council Office (PCO)
Senate of Canada
Communication techniques
Communication techniques that have been used or are expected to be used in the course of the undertaking:
RAREi - The Canadian Forum for Rare Disease Innovators / iRARE, le Forum canadien des innovateurs spécialisés dans les maladies rares - Address & Client Representative
Address:
PO Box 81062
Ottawa, ON K1P 1B1
Canada
Telephone number:
613-800-8340
Client representative:
Bob McLay, Chair
Address information
150 Metcalfe Street, Suite 604
Ottawa, ON K2P 1P1
Canada
Telephone number:
613-800-8340
Address & contact information
3Sixty Public Affairs Inc. / 3Sixty Public Affairs Inc.
Address:
150 Metcalfe Street, Suite 604
Ottawa, ON K2P 1P1
Canada
Telephone number:
613-800-8340
Public offices held:
Johanne Chambers
List of Public Offices Held
Position
Period Held
Last Date Designated Public Office Held
Negotiator
Indian and Northern Affairs Canada, Negotiations East Branch
2007
to
2014
Not a designated office
Lawyer
Department of Justice, Department of Legal Services for INAC
2006
to
2007
Not a designated office
Senior Policy Analyst
Indian and Northern Affairs Canada, Treaties, Research, International and Gender Equality Branch
2004
to
2006
Not a designated office
Address information
Argenx Canada Inc.
9131 Keele Street Suite A4
Vaughan, ON L4K 0G7
Canada
Address information
Biogen Canada Inc.
90 Burnhamthorpe Rd W
Suite 1100
Mississauga, ON L5B 3C3
Canada
Address information
Astellas Pharma Canada
West Tower, 675 Cochrane Drive Suite 500
Markham, ON L3R 0B8
Canada