Registry of Lobbyists
Subject matters | Details | Categories |
---|---|---|
Health,
Research and Development
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Engagement with officials on federal policies to ensure timely access to treatments for rare disorders, including pulmonary arterial hypertension, and to promote research and development related to treatments for rare disorders.
|
Policies or Program
|
Health
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Engagement with officials regarding the implementation of the National Strategy on Drugs for Rare Diseases.
|
Policies or Program
|
Health
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Raise awareness among parliamentarians and government officials regarding pulmonary arterial hypertension, a rare disorder characterized by high blood pressure (hypertension) in the arteries of the lungs.
|
Policies or Program
|
Communication techniques that have been used or are expected to be used in the course of the undertaking: