Registry of Lobbyists

Monthly Communication Report

363257-634373

Registrant name: WILLIAM DEMPSTER
Client: RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares
Associated registration: 778465-363257-16
Communication date: 2025-03-21
Posted date: 2025-04-15

Designated Public Office Holders who participated in the communication: Stephen Ellis, Member of Parliament
House of Commons
 
List of Details
Subject matter Detail
Budget, Health, Industry Bill C-64: An Act respecting pharmacare, with a particular focus on access to medicines and rare disease and orphan drug policies
Budget, Health, Industry Engagement with officials on issues related to the National Strategy for Rare Disease Drugs, and other policies or programs related to rare diseases.
Budget, Health, Industry Federally-funded public drug plans, with respect to reimbursement for drug products for federal plan beneficiaries.
Budget, Health, Industry Federal programs and budgetary initiatives related to the Federal-Provincial-Territorial funding arrangements regarding pharmaceuticals including any health technology assessment-related or other policy discussions that might involve Health Canada and its ongoing relationship with the Canadian Agency for Drugs and Technologies in Health (CADTH), Canada's Drug Agency and/or other pan-Canadian health organizations.
Budget, Health, Industry Guidelines, policies and programs related to regulatory and reporting functions of the Patented Medicine Prices Review Board.
Budget, Health, Industry, Research and Development, Science and Technology nnovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda, the Biomanufacturing and Life Sciences Strategy and other government policies and programs related to incentivizing research and development activities in Canada.
Health Regulatory amendments and/or guidelines and/or policies related to the Food and Drugs Act and Health Canada review of drugs for rare diseases.
 

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