Cystic Fibrosis Canada / Fibrose kystique Canada
Registration:
12
of
31
(2016-04-19
to
2017-02-06)
Grant, Contribution or Other Financial Benefit, Policies or Program
- Increased federal investment in health-related research. We worked with the Health Charities Coalition of Canada (HCCC) to draft content for a press release urging the federal government to invest more in basic science in Canada.
Policies or Program
- Common Drug Review, importance of meaningful public/patient input into the drug review process
- Encouraging the development of a rare disease strategy in Canada (similar to the policies for rare diseases in Europe and the United States).
Policies or Program, Regulation
- Health Canada with respect to the regulation of pancreatic enzymes used in the management of cystic fibrosis. Recommend product should be listed on Schedule F to the Food and Drugs Regulations.