Multiple Sclerosis Society of Canada / Societe canadienne de la sclerose en plaques
Registration:
44
of
73
(2020-02-19
to
2020-06-30)
Grant, Contribution or Other Financial Benefit, Policies or Program
- Accelerate MS research: to accelerate MS research efforts and investments in areas that are of priority for people with MS and hold the most promise in leading to new treatments, better quality of life and a cure.
Legislative Proposal, Bill or Resolution
- Private Members Bill formerly known as Bill C-458, along with a proposal the MS Society of Canada has to improve flexibility in the Employment Insurance Sickness Benefits Program
- We are asking members of parliament to support Motion M-192 that states "That the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities be instructed to provide recommendations for legislative and policy changes necessary to ensure that the needs of persons with episodic disabilities caused, among other things, by multiple sclerosis, be adequately protected to ensure equity in government policy to support Canadians across all types of disability; that the Committee report to the House by February 2019; and that it be instructed to request a comprehensive government response to its report, pursuant to Standing Order 109.”
- We are asking that the federal government pass Bill C-81, the proposed Accessible Canada Act which includes all Canadians with disabilities whether their disabilities are visible or invisible, and whether they are permanent or episodic (periods of wellness followed by periods of disability). The definition of disability needs to include the notion of the changing dynamic of disability including episodic, which is the case for individuals living with progressive neurological diseases like MS;
Legislative Proposal, Bill or Resolution, Policies or Program
- Budget, with respect to increased funding for the Canadian Institutes of Health Research
- Budget, with respect to measures benefitting persons with disabilities and caregivers
- Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
- Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.
Policies or Program
- Access to drugs, with respect to the creation of catastrophic drug program for high cost medications
- Code of Practice, with respect to persons with MS and other disabilities
- Common Drug Review, with respect to increased public input during review process
- Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
- Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
- MS as military service-related condition, with respect to veterans' benefits and pensions
- Supportive low-cost housing, in respect for persons with MS and other chronic conditions and disabilities