Canadian Organization for Rare Disorders
Registration:
2
of
3
(2024-05-10
to
2024-08-06)
Details Regarding the Identified Subject Matter
Subject matters
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Details
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Categories
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Budget, Health, Industry
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Engagement with officials on issues related to the National Strategy for Rare Disease Drugs, and other policies or programs.
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Policies or Program
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Health, Industry, Research and Development, Science and Technology
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Engagement with officials on the development of the Canada's Drug Agency and Bill C-64: An Act respecting pharmacare
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Legislative Proposal, Bill or Resolution, Policies or Program
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Health, Industry, Research and Development, Science and Technology
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Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders
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Policies or Program
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Health
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Regulatory amendments to the Food and Drugs Act Regulations to implement an orphan drug regulatory framework
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Regulation
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Budget, Health, Industry, Research and Development, Science and Technology
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Scientific Research and Experimental Development Tax Incentive Program as it pertains to research and development of treatments for rare disorders
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Policies or Program
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Budget, Health, Industry
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Share perspectives of the rare disorders patient community on drug pricing issues, specifically regulations and guidelines related to the Patented Medicine Prices Review Board.
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Regulation, Policies or Program
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