Registration - In-house Organization

MS Canada / SP Canada / Pamela Valentine, President & CEO

Registration Information

In-house Organization name: MS Canada / SP Canada
Previous in-house organization names
Responsible Officer Name: Pamela Valentine, President & CEO
Responsible Officer Change History
Initial registration start date: 2007-03-23
Registration status: Active
Registration Number: 935976-14937

Associated Communications

Total Number of Communication Reports: 733

Monthly communication reports in the last 6 months: 5

Version 26 of 75 (2017-04-01 to 2017-05-08)

Registration versions:

Version 26 of 75 (2017-04-01 to 2017-05-08)

Lobbying Information

Subject Matters

Budget
Education
Employment and Training
Health
Housing
Pensions
Research and Development
Science and Technology
Taxation and Finance
Transportation

Subject Matter Details

Grant, Contribution or Other Financial Benefit, Policies or Program

Accelerate MS research: to accelerate MS research efforts and investments in areas that are of priority for people with MS and hold the most promise in leading to new treatments, better quality of life and a cure.

Legislative Proposal, Bill or Resolution

Private Members Bill formerly known as Bill C-458, along with a proposal the MS Society of Canada has to improve flexibility in the Employment Insurance Sickness Benefits Program

Legislative Proposal, Bill or Resolution, Policies or Program

Budget, with respect to increased funding for the Canadian Institutes of Health Research
Budget, with respect to measures benefitting persons with disabilities and caregivers
Employment Insurance sickness benefits, with respect to creation of flexible benefits for persons with MS and other episodic disabilities
Establishment of national strategy for neurological conditions, with respect to persons with MS and other neurological conditions.

Policies or Program

Access to drugs, with respect to the creation of catastrophic drug program for high cost medications
Code of Practice, with respect to persons with MS and other disabilities
Common Drug Review, with respect to increased public input during review process
Comprehensive disability income programs, with respect to persons with MS and other chronic and episodic disabilities
Home care, with respect to creation with provincial/ territorial governments programs relating to increased home care for persons with MS and other disabilities/ diseases and the support of caregivers
MS as military service-related condition, with respect to veterans' benefits and pensions
Supportive low-cost housing, in respect for persons with MS and other chronic conditions and disabilities

Communication Techniques

Written communication
Oral communication
Grass-roots communication

Government Institutions

Atlantic Canada Opportunities Agency (ACOA)
Canada Post Corporation (CPC)
Canada Revenue Agency (CRA)
Canadian Heritage (PCH)
Canadian Transportation Agency (CTA)
Employment and Social Development Canada (ESDC)
Finance Canada (FIN)
Global Affairs Canada (GAC)
Health Canada (HC)
House of Commons
Indigenous and Northern Affairs Canada
Innovation, Science and Economic Development Canada (ISED)
Office of the Information Commissioner of Canada (OIC)
Office of the Privacy Commissioner of Canada (OPC)
Patented Medicine Prices Review Board (PMPRB)
Prime Minister's Office (PMO)
Privy Council Office (PCO)
Public Health Agency of Canada (PHAC)
Senate of Canada
Service Canada (ServCan)
Transport Canada (TC)
Treasury Board Of Canada Secretariat (TBS)
Veterans Affairs Canada (VAC)

In-house Organization Details

Description of the organization's activities

The Multiple Sclerosis Society of Canada is a health charity that supports research to find the cause, prevention and cure for MS, provides services and programs for persons with MS and their families and caregivers, and educates the public about the disease.

Responsible officer name and position during the period of this registration

Sylvia Leonard, Interim President & CEO

Organization's membership or classes of membership

The MS Society has approximately 28,000 members who join the organization through their local chapters or division offices.

Government funding

End date of the last completed financial year: 2015-12-31

List of Government Funding
Government Institution	Funding Received in Last Financial Year	Funding Expected in Current Financial Year
BC Gaming - Ministry of Public Safety & Solicitor General-Gaming and Policy Enforcement	$406,228.00	Yes
City of Brant	$2,138.00	No
City of Edmonton	$17,004.00	Yes
City of Hamilton, Ontario	$16,720.00	Yes
City of LLoydminster	$816.00	No
City of Regina	$4,163.00	No
City of Saskatoon	$6,500.00	No
Dept of Health & Social Services, Quebec	$706,211.00	Yes
Employment and Social Development Canada (ESDC)	$75,521.00	Yes
Family and Community Support Services, Government of Alberta	$54,581.00	Yes
Finance Canada (FIN)	$2,578.00	No
Gov't of Alberta - Alberta Gaming and Liquor Commission	$11,819.00	Yes
Gov't of Canada - New Horizons	$29,193.00	Yes
Gov't of Newfoundland and Labrador - Dept of Health and Community Services	$4,445.00	Yes
Government of Alberta - Alberta Gaming - Community Initiative Program (Friendly Visiting)	$116,799.00	No
Government of Quebec - Emploi-Quebec	$26,218.00	Yes
Kitchener-Waterloo & Community Foundation & WiiFit Program	$700.00	Yes
Municipality of Abitibi	$63.00	Yes
Municipality of Autres	$250.00	No
Municipality of Montreal	$5,000.00	Yes
Municipality of Victoriaville	$1,317.00	No
Northern Ontario Heritage Fund, Government of Canada	$19,872.00	Yes
Programme d'accompagnement en loisirs, Gouvernement du Quebec	$10,698.00	Yes
Public Services and Procurement Canada (PSPC)	$3,821.00	Yes
SaskTel Telcare	$5,000.00	No

In-house Organization Contact Information

Address:
Suite 500
250 Dundas Street West
Toronto, ON M5T 2Z5
Canada

Telephone number: 416-967-3008 Ext. 3008

Lobbyists Details

Employees who lobby for the organization

Louis Adam, Executive Director, Quebec Division | No public offices held
David Arbuthnot, National VP, Shared Services | No public offices held
Angelica Asis, Manager, Research Information and Partnerships | No public offices held
Donna Czukar, Senior Advisor, National Programs and Services | No public offices held
Benjamin Davis, Vice President, National Government Relations | No public offices held
Sharon Farrish, Director, Programs | No public offices held
Darell Hominuk, Director, Client Services | No public offices held
Judith Kays, Director, Marketing, Communications, and Government Relations | No public offices held
Julie Kelndorfer, Director, Government and Community Relations | No public offices held
Erin Kuan, President, Saskatchewan and Manitoba | No public offices held
Karen Lee, Vice-President, Research | No public offices held
Sylvia Leonard, Interim President & CEO | No public offices held
Jessica MacPherson, Director, Government Relations and Research Support | No public offices held
Lisa McCoy, President, Ontario and Nunavut Division | No public offices held
Cathy Nidoski, Communications and Government Relations Manager | No public offices held
Lori Radke, National VP, Marketing and Development | No public offices held
Nathalie Ross, Director Programs, Services and Government Relations | No public offices held
Pam Seto, AVP, Marketing and Communications | No public offices held
Abidah Shamji, Manager, Government Relations | No public offices held
Peter Van Harmelen, Assistant Vice-President, Finance | No public offices held
Tania Vrionis, President, BC and Yukon Division | No public offices held
Garry Wheeler, President, Alberta and Northwest Territories Division | No public offices held

MS Canada/SP Canada

The following names have been used on or after July 2, 2008

The following names have been used on or after July 2, 2008
Name	From	To
MS Canada/SP Canada	2023-01-12	current
Multiple Sclerosis Society of Canada/Societe canadienne de la sclerose en plaques	2008-12-22	2023-01-12

The following names have been used before July 2, 2008

Multiple Sclerosis Society of Canada

MS Canada / SP Canada

Responsible Officer History
Responsible Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)
Pamela Valentine	2018-01-11	Current
Sylvia Leonard	2017-04-01	2018-01-11
Yves Savoie	2007-03-23	2017-04-01

Date Modified:: 2025-03-07

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Registration - In-house Organization

MS Canada / SP Canada / Pamela Valentine, President & CEO

Registration Information

Associated Communications

Version 26 of 75 (2017-04-01 to 2017-05-08)

Version 26 of 75 (2017-04-01 to 2017-05-08)

Subject Matters

Subject Matter Details

Grant, Contribution or Other Financial Benefit, Policies or Program

Legislative Proposal, Bill or Resolution

Legislative Proposal, Bill or Resolution, Policies or Program

Policies or Program

Communication Techniques

Government Institutions

Description of the organization's activities

Responsible officer name and position during the period of this registration

Organization's membership or classes of membership

Government funding

In-house Organization Contact Information

Employees who lobby for the organization