Lobbying Information
Subject Matters
- Budget
- Health
- Industry
- Research and Development
- Science and Technology
- Taxation and Finance
Subject Matter Details
Grant, Contribution or Other Financial Benefit, Policies or Program
- Increased federal investment in health-related research
Policies or Program
- Common Drug Review, importance of meaningful public/patient input into the drug review process
- Encouraging the development of an orphan product policy
Policies or Program, Regulation
- Health Canada with respect to the regulation of pancreatic enzymes used in the management of cystic fibrosis. Recommend product should be listed on Schedule F to the Food and Drugs Regulations.
Communication Techniques
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Written communication
-
Oral communication
-
Grass-roots communication
Government Institutions
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Canada Revenue Agency (CRA)
-
Canadian Institutes of Health Research (CIHR)
-
Finance Canada (FIN)
-
Health Canada (HC)
-
House of Commons
-
Industry Canada
-
Public Health Agency of Canada (PHAC)
-
Senate of Canada
In-house Organization Details
Description of the organization's activities
Cystic Fibrosis Canada is a health charity that supports cystic fibrosis (CF)-related research and care with the goal of finding a cure or effective control for CF, and educates the public about the disease.
Responsible officer name and position during the period of this registration
Maureen Adamson,
Chief Executive Officer
Organization's membership or classes of membership
Cystic Fibrosis Canada has 50 volunteer chapters across Canada. The majority of our members have a personal connection to cystic fibrosis.
Government funding
End date of the last completed financial year:
2012-01-31
List of Government Funding
Government Institution
|
Funding Received in Last Financial Year
|
Funding Expected in Current Financial Year
|
BC Ministry of Health
|
$85,400.00
|
Yes
|
BC Ministry of Health
|
$112,700.00
|
Yes
|
In-house Organization Contact Information
Address:
2221 Yonge Street
Suite 601
Toronto, ON M4S 2B4
Canada
Telephone number:
416-485-9149
Fax number:
416-485-0960
Lobbyists Details
Employees who lobby for the organization
- Ken Chan,
Vice-President, Advocacy, Research & Healthcare |
No public offices held
- Kelly Gorman,
Program Director, Advocacy & Public Policy |
No public offices held
- Anchalee Srisombun,
Health Policy Advisor & Project Manager, Access to Medicines |
No public offices held
- Joanna Valsamis,
Program Manager, Advocacy, Research and Healthcare |
No public offices held