Lobbying Information
Subject Matters
- Health
- Research and Development
- Science and Technology
Subject Matter Details
Grant, Contribution or Other Financial Benefit, Policies or Program
- Increased federal investment in health-related research. We worked with the Health Charities Coalition of Canada (HCCC) to draft content for a press release urging the federal government to invest more in basic science in Canada.
Policies or Program
- Common Drug Review, importance of meaningful public/patient input into the drug review process
- Encouraging the development of a rare disease strategy in Canada (similar to the policies for rare diseases in Europe and the United States).
Policies or Program, Regulation
- Health Canada with respect to the regulation of pancreatic enzymes used in the management of cystic fibrosis. Recommend product should be listed on Schedule F to the Food and Drugs Regulations.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
Government Institutions
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Canada Revenue Agency (CRA)
-
Canadian Institutes of Health Research (CIHR)
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Finance Canada (FIN)
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Health Canada (HC)
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House of Commons
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Patented Medicine Prices Review Board (PMPRB)
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Prime Minister's Office (PMO)
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Public Health Agency of Canada (PHAC)
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Senate of Canada
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Statistics Canada (StatCan)
In-house Organization Details
Description of the organization's activities
Cystic Fibrosis Canada is a health charity that supports cystic fibrosis (CF)-related research and care with the goal of finding a cure or effective control for CF, and educates the public about the disease.
Responsible officer name and position during the period of this registration
Norma Beauchamp,
President and Chief Executive Officer
Organization's membership or classes of membership
Cystic Fibrosis Canada has 50 volunteer chapters across Canada. The majority of our members have a personal connection to cystic fibrosis.
Government funding
End date of the last completed financial year:
2016-01-31
List of Government Funding
Government Institution
|
Funding Received in Last Financial Year
|
Funding Expected in Current Financial Year
|
BC Ministry of Health
|
$229,042.00
|
Yes
|
In-house Organization Contact Information
Address:
2323 Yonge Street
Suite 800
Toronto, ON M4P 2C9
Canada
Telephone number:
416-485-9149
Ext.
225
Fax number:
416-485-5707
Lobbyists Details
Employees who lobby for the organization
- Norma Beauchamp,
President & CEO |
No public offices held
- James Murphy,
Chief Philanthropy Officer |
No public offices held
- Joanna Valsamis,
Chief Healthcare, Research & Advocacy Officer |
No public offices held
- John Wallenburg,
Chief Scientific Officer |
No public offices held