Lobbying Information
Subject Matters
- Budget
- Constitutional Issues
- Employment and Training
- Health
- Labour
- Municipalities
- Research and Development
- Taxation and Finance
Subject Matter Details
Grant, Contribution or Other Financial Benefit, Policies or Program
- Add Inflammatory Bowel Disease onto the Public Health Agency of Canada’s (PHAC) list of identified chronic conditions.
PHAC has developed a 3-year Preventing Chronic Disease Strategic Plan 2013-2016. The strategy identifies numerous major chronic conditions; however Inflammatory Bowel Disease (IBD) is not included and has been overlooked as a major chronic disease. The CCFC wants IBD (which includes Crohn’s disease and ulcerative colitis) to be recognized as a major chronic condition within the Strategy and wishes it be listed on the PHAC website.
- Establishing an Inflammatory Bowel Disease (IBD) SPOR network.
The Canadian Institutes of Health Research (CIHR) has launched an initiative called Strategy for Patient Oriented Research (SPOR) to help ensure that research conducted in Canada will meet the needs of patients.
The CCFC responded to the open call and submitted an "Expression of Interest" to establish an IBD network, with CCFC in the leadership role, as part of the government’s SPOR initiative. IBD is well poised to be a SPOR Network because of the chronic nature of the condition, the burden of illness, and the readiness within the IBD research & clinical community to strengthen its collaborations.
SPOR will create between eight and twelve themed networks. These networks are critical and will guide research that will inform clinical care and public policy.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
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In-person meetings
Government Institutions
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Canadian Institutes of Health Research (CIHR)
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Finance Canada (FIN)
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Health Canada (HC)
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House of Commons
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Human Resources and Skills Development Canada (HRSDC)
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Prime Minister's Office (PMO)
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Public Health Agency of Canada (PHAC)
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Senate of Canada
In-house Organization Details
Description of the organization's activities
The Crohn`s and Colitis Foundation of Canada (CCFC) is a volunteer-based national charity dedicated to finding cures for Crohn`s disease and ulcerative colitis, the major conditions that constitute Inflammatory Bowel Disease (IBD), and to improving the lives of children and adults affected by these chronic conditions. The CCFC delivers on its promise by investing in IBD research, education and awareness. The Foundation is Canada`s top funder of cure-directed research and is a world leader in non-governmental funding per capita of such research.
Responsible officer name and position during the period of this registration
Aida Fernandes,
Chief Science and Education Officer
Organization's membership or classes of membership
The Crohn’s and Colitis Foundation of Canada is comprised of approximately 65,000 volunteers, donors or any individual who expresses interest in engaging with the CCFC. There is no paid membership. There are 45 chapters and 24 affiliates (which are chapters in the making) across Canada. The CCFC is governed by the Board of Directors. It is further supported by numerous committees, groups and advisory councils.
Government funding
No government funding was received during the last completed financial year.
In-house Organization Contact Information
Address:
60 St. Clair Avenue East, Suite 600
Toronto, ON M4T 1N5
Canada
Telephone number:
416-920-5035
Ext.
214
Fax number:
416-929-0364
Lobbyists Details
Employees who lobby for the organization
- Aida Fernandes,
Chief Science and Education Officer |
No public offices held
- Natasha Mistry,
Manager, Public Policy and Stakeholder Relations |
No public offices held