Lobbying Information
Subject Matters
- Budget
- Health
- Municipalities
- Research and Development
- Science and Technology
- Taxation and Finance
Subject Matter Details
Grant, Contribution or Other Financial Benefit
- Increased federal funding for research to cure, prevent or treat Crohn's disease and ulcerative colitis (also called inflammatory bowel disease).
Legislative Proposal, Bill or Resolution, Policies or Program, Regulation
- Guaranteeing washroom access when reasonable in federal government buildings for Canadians living with inflammatory bowel diseases such as Crohn's disease and ulcerative colitis under the Accessible Canada Act (S.C. 2019, c. 10).
Policies or Program
- Health care plans for federal employees should adopt the Non-Medical Switch Patient Decision Matrix, exempting certain vulnerable patient sub groups from needing to switch from originator biologic medications to biosimilars.
Communication Techniques
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Written communication
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Oral communication
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Grass-roots communication
Government Institutions
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Canadian Institutes of Health Research (CIHR)
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Finance Canada (FIN)
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Health Canada (HC)
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House of Commons
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Prime Minister's Office (PMO)
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Senate of Canada
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Treasury Board Of Canada Secretariat (TBS)
In-house Organization Details
Description of the organization's activities
Crohn`s and Colitis Canada is a volunteer-based national charity dedicated to finding cures for Crohn`s disease and ulcerative colitis, the major conditions that constitute inflammatory bowel disease (IBD), and to improving the lives of children and adults affected by these chronic conditions. Crohn's and Colitis Canada delivers on its promise by investing in research, education and awareness. The organization is Canada's top funder of cure-directed research and is a world leader in non-governmental funding per capita of such research. Crohn's and Colitis Canada is also committed to supporting education and outreach to and on behalf of the estimated 320,000 Canadian adults and children affected by these conditions.
Responsible officer name and position during the period of this registration
Lori Radke,
President & Chief Executive Officer
Organization's membership or classes of membership
Crohn’s and Colitis Canada is comprised of approximately 65,000 volunteers, donors or any individual who expresses interest in engaging with the organization. There is no paid membership. There are 45 chapters and 24 affiliates (which are chapters in the making) across Canada. Crohn's and Colitis Canada is governed by the Board of Directors. It is further supported by numerous committees, groups and advisory councils.
Government funding
No government funding was received during the last completed financial year.
In-house Organization Contact Information
Address:
2110-439 University Avenue
Toronto, ON M5G 1Y8
Canada
Telephone number:
416-990-4382
Fax number:
416-929-0364
Lobbyists Details
Employees who lobby for the organization
- Kate Lee,
Vice President, Research and Patient Programs |
No public offices held
- Lori Radke,
President and CEO |
No public offices held
- Patrick Tohill,
Director, Advocacy and Government Affairs |
No public offices held