Registration - Consultant

RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares / WILLIAM DEMPSTER, Consultant

Registration Information

Client name: RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares
Lobbyist name: WILLIAM DEMPSTER, Consultant
Initial registration start date: 2018-10-29
Registration status: Active
Registration Number: 778465-363257

Associated Communications

Total Number of Communication Reports: 60

Monthly communication reports in the last 6 months: 0

Version 1 of 16 (2018-10-29 to 2019-03-26)

Registration versions:

Version 1 of 16 (2018-10-29 to 2019-03-26)

Lobbying Information

Subject Matters

Economic Development
Health
Industry
Intellectual Property
International Trade
Science and Technology
Taxation and Finance

Subject Matter Details

Legislative Proposal, Bill or Resolution, Policies or Program, Regulation

Ratification and implementation of the intellectual property-related elements of the United States Mexico Canada Agreement.

Policies or Program

Federal programs and budgetary initiatives related to the Federal-Provincial-Territorial funding arrangements regarding pharmaceuticals including addressing any health technology assessment-related or other policy discussions that might involve Health Canada and its ongoing relationship with the Canadian Agency for Drugs and Technologies in Health (CADTH) and/or other pan-Canadian health organizations.
Federally-funded public drug plans, with respect to reimbursement for drug products for federal plan beneficiaries.
Innovation, Science and Economic Development Canada regarding the Innovation and Skills Agenda and other government policies and programs related to incentivizing research and development activities in Canada.
Proposals to amend guidelines related to the operationalization of the legislation and regulations governing the Patented Medicine Prices Review Board
The federal role in considering developing and/or funding a national pharmacare program, including engagement with the Advisory Council on the Implementation of National Pharmacare and its Secretariat on issues related to access to medicines and rare disease and orphan drug policies

Policies or Program, Regulation

Proposed amendments to the Patented Medicines Regulations pre-published in Canada Gazette, Part I on December 2, 2017.
Regulatory amendments and/or guidelines and/or policies related to the Food and Drugs Act and Health Canada review of drugs for rare diseases.

Communication Techniques

Written communication
Oral communication

The lobbyist has arranged or expects to arrange one or more meetings on behalf of the client between a public office holder and any other person in the course of this undertaking.

Government Institutions

Global Affairs Canada (GAC)
Health Canada (HC)
House of Commons
Innovation, Science and Economic Development Canada (ISED)
Justice Canada (JC)
Patented Medicine Prices Review Board (PMPRB)
Prime Minister's Office (PMO)
Privy Council Office (PCO)
Senate of Canada

Client Details

Government funding

No government funding was received during the last completed financial year.

Client Contact Information

Address:
PO Box 81062
Ottawa, ON K1P 1B1
Canada

Telephone number: 613-800-8340

Client representative

Bob Mclay, Chair

Parent Company Information

RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares is not a subsidiary of any other parent companies.

Coalition Members Information

Alexion Pharma Canada Corp.
- 3100 Rutherford Road
  Suite 300
  Vaughan, ON L4K 0G6
  Canada
Biogen Canada Inc.
- 90 Burnhamthorpe Rd W
  Suite 1100
  Mississauga, ON L5B 3C3
  Canada
Biomarin Pharmaceuticals Inc.
- c/o Mark Bennett, Cassels Brock, 40 KING STREET
  2100 SCOTIA PLAZA
  Toronto, ON M5H 3C2
  Canada
Horizon Therapeutics Canada
- 9131 Keele Street
  Unit 4A
  Vaughan, ON L4K 0G7
  Canada
Ipsen Pharmaceuticals Canada Inc.
- 5060 Spectrum Way
  5th Floor
  Mississauga, ON L4W 5N5
  Canada
Shire Pharma Canada ULC
- 22 Adelaide St. W.
  Suite 3800
  Toronto, ON M5H 4E3
  Canada
Sobi Canada Inc.
- 1155 North Service Rd. West
  Unit #11
  Oakville, ON L6M 3E3
  Canada
Vertex Pharmaceuticals (Canada) Inc.
- 20 Bay Street
  Suite 1520
  Toronto, ON M5J 2N8
  Canada

Individual, organization or corporation with a Direct Interest Beneficiary Information

The activities of RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares are not controlled or directed by another individual, organization or corporation with a direct interest in the outcome of this undertaking.

Subsidiary Beneficiary Information

RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares does not have any subsidiaries that could have a direct interest in the outcome of the undertaking

Lobbyist Details

WILLIAM DEMPSTER | Public offices held

Business address:
150 Metcalfe Street
Suite 604
OTTAWA, ON K2P 1P1
Canada

Telephone number: 613-614-0283
Fax number: 613-249-3645

Consultant Firm and Address

Firm: 3Sixty Public Affairs Inc. / 3Sixty Public Affairs Inc.

Address:
150 Metcalfe Street
Suite 604
Ottawa, ON K2P 1P1
Canada

Telephone number: 343-961-9715

RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares

The following names have been used on or after July 2, 2008

The following names have been used on or after July 2, 2008
Name	From	To
RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares	2018-10-29	current

The following names have been used before July 2, 2008

RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares
RAREi - The Canadian Forum for Rare Disease Innovators/RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares

RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares

Responsible Officer History
Responsible Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)

List of Public Offices Held
Position	Period Held	Last Date Designated Public Office Held
Assistant House of Commons, Office of the Hon. Irwin Cotler, MP	2002 to 2003	Not a designated office

List of Public Offices Held
Position	Period Held	Last Date Designated Public Office Held
Assistant House of Commons, Office of the Hon. Irwin Cotler, MP	2002 to 2003	Not a designated office

Date Modified:: 2025-03-07

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Registration - Consultant

RAREi - The Canadian Forum for Rare Disease Innovators / RAREi, le Forum canadien des innovateurs spécialisés dans les maladies rares / WILLIAM DEMPSTER, Consultant

Registration Information

Associated Communications

Version 1 of 16 (2018-10-29 to 2019-03-26)

Version 1 of 16 (2018-10-29 to 2019-03-26)

Subject Matters

Subject Matter Details

Legislative Proposal, Bill or Resolution, Policies or Program, Regulation

Policies or Program

Policies or Program, Regulation

Communication Techniques

Government Institutions

Government funding

Client Contact Information

Client representative

Parent Company Information

Coalition Members Information

Individual, organization or corporation with a Direct Interest Beneficiary Information

Subsidiary Beneficiary Information

Consultant Firm and Address