Total Number of Communication Reports: 0
Monthly communication reports in the last 6 months: 0
Subject matters | Details | Categories |
---|---|---|
Budget, Health, Industry
|
Engagement with officials on issues related to the National Strategy for Rare Disease Drugs, and other policies or programs.
|
Policies or Program
|
Budget, Health, Industry
|
Engagement with officials on the development of the Canada's Drug Agency and Bill C-64: An Act respecting pharmacare
|
Legislative Proposal, Bill or Resolution, Policies or Program
|
Health, Industry, Research and Development, Science and Technology
|
Establish Innovation, Science and Economic Development Canada policies related to research and development of treatments for rare disorders
|
Policies or Program
|
Health
|
Regulatory amendments to the Food and Drugs Act Regulations to implement an orphan drug regulatory framework.
|
Regulation
|
Budget, Health, Industry, Research and Development, Science and Technology
|
Scientific Research and Experimental Development Tax Incentive Program as it pertains to research and development of treatments for rare disorders
|
Policies or Program
|
Budget, Health, Industry
|
Share perspectives of the rare disease patient community on drug pricing issues, specifically regulations and guidelines related to the Patented Medicine Prices Review Board.
|
Policies or Program, Regulation
|
Address:
151 Bloor Street West, Suite 600
Toronto, ON M5S 1S4
Canada
Telephone number:
416-969-7464
Durhane Wong-Rieger, President
Canadian Organization for Rare Disorders is not a subsidiary of any other parent companies.
Canadian Organization for Rare Disorders is not a coalition.
The activities of Canadian Organization for Rare Disorders are not controlled or directed by another individual, organization or corporation with a direct interest in the outcome of this undertaking.
Canadian Organization for Rare Disorders does not have any subsidiaries that could have a direct interest in the outcome of the undertaking
Stephanie Levee | Public offices held
Firm: 3Sixty Public Affairs Inc.